The final tally has been done, $2,785. A deep and sincere thank you to all who donated money and gave their words of encouragement for April for Alex. You are all wonderful!!
Alex, I am hopeful that each dollar is another step towards helping you and folks like you who have been stricken by a disease that is still trying to be understood and treated! You are a brave and courageous gal!
Chris
Monday, June 30, 2008
Friday, June 6, 2008
New Tally and a few more Thank yous
The number has risen! I know, it's June, but I've been gathering a few late pledge givers. Thanks Joan for your $100 donation and Steve for a whopping $180!!
You have all been wonderful. The new total is $2,705!!
Again, thank you all so much!
You have all been wonderful. The new total is $2,705!!
Again, thank you all so much!
Wednesday, May 28, 2008
Wednesday, May 7, 2008
More donations have come in!
More people to thank for their contributions! Todd $25, Mishell $30, Glen and Ginger $200, John $160. Thanks again everyone!! The total has risen! New amount is $2,345!!! How much higher can we go??
Tuesday, May 6, 2008
Tally so far
Still collecting monies. As of May 6th the total is $1,930!! Thank you all for your gifts!
Tuesday, April 29, 2008
80 Miles!!
Wow! I have done it! Yesterday morning marked the last 7 miles to the 80 mile mark. I am glad to be done...and am very happy for all your support.
A quick shout out to the latest contributers, Sherry at $50, Barbara at $50 and Frederica at $25. Thank you!!
Everyone has been awesome with their words of encouragement and their monies pledged.
So, just a quick note about this weekend's walks. They have all been done along the Sellwood Trail because it is such a great place to walk as I've been saying. The cottonwoods, or the smell of the cottonwoods take me back to my childhood. It is a sweet smell, but I do not know what to compare it to. The leaves of the tree are bright green and lovely. The fluffy yellow goslings of the Canadian geese have been busily following the parentals about eating voraciously the green grass that is so abundant. Ahhh, it is a great time of year.
Alex to you a great big hello! I hope the monies raised help take some steps toward helping you and those who have been stricken by Neuroacanthocytosis!
Be well!
Chris
A quick shout out to the latest contributers, Sherry at $50, Barbara at $50 and Frederica at $25. Thank you!!
Everyone has been awesome with their words of encouragement and their monies pledged.
So, just a quick note about this weekend's walks. They have all been done along the Sellwood Trail because it is such a great place to walk as I've been saying. The cottonwoods, or the smell of the cottonwoods take me back to my childhood. It is a sweet smell, but I do not know what to compare it to. The leaves of the tree are bright green and lovely. The fluffy yellow goslings of the Canadian geese have been busily following the parentals about eating voraciously the green grass that is so abundant. Ahhh, it is a great time of year.
Alex to you a great big hello! I hope the monies raised help take some steps toward helping you and those who have been stricken by Neuroacanthocytosis!
Be well!
Chris
Friday, April 25, 2008
April is Almost Over
Hello! I have been horribly remiss in adding notes through the month. It shall quickly be over, although, I do have a weekend of walking ahead of me. Being a slug is a good thing if you're a slug, however, if you're committed to walking 80 miles, it doesn't help. Another 4 miles logged this evening.
The Sellwood Trail is such a great place to walk especially this time of year with the wild life, herons, Canadian geese, hummingbirds and an unidentified bird perched in a tree. He reminded me of an owl in the way he moved his head and he appeared to have tufts of feathers at his head and a big white front, alas, I could not see him well enough. The day was warmish with nearly clear skies. Frankly, we haven't had many of those this spring. So, back to Canandian geese. There is a goosprey (as I heard a father telling his daughter tonight)along the trail. It seems the craziest thing, but a pair of Canadian geese have taken over an osprey nest this spring to hatch their young. A dangerous game I would think as the nest is on a pole 25 feet or so off the ground.
So, the 4 miles tonight puts me at 58.75 miles for the month. Again, I have a weekend of walking in front of me.
A great big thanks for the latest pledgers (it's not too late!!). Wendy donated $25 and Georg and Patricia $100. Thank you!
Blessings to all!
Chris
The Sellwood Trail is such a great place to walk especially this time of year with the wild life, herons, Canadian geese, hummingbirds and an unidentified bird perched in a tree. He reminded me of an owl in the way he moved his head and he appeared to have tufts of feathers at his head and a big white front, alas, I could not see him well enough. The day was warmish with nearly clear skies. Frankly, we haven't had many of those this spring. So, back to Canandian geese. There is a goosprey (as I heard a father telling his daughter tonight)along the trail. It seems the craziest thing, but a pair of Canadian geese have taken over an osprey nest this spring to hatch their young. A dangerous game I would think as the nest is on a pole 25 feet or so off the ground.
So, the 4 miles tonight puts me at 58.75 miles for the month. Again, I have a weekend of walking in front of me.
A great big thanks for the latest pledgers (it's not too late!!). Wendy donated $25 and Georg and Patricia $100. Thank you!
Blessings to all!
Chris
Monday, April 7, 2008
New Pledges and more miles!
A bit wet this morning! My walk may be a bit soggy!
A great BIG thanks to Arleen and Bob for a $400 pledge and to Bob J for the $25 contribution! All your dollars and support are appreciated!
I enjoyed a 7 miler with my walking partners on Saturday morning! The laughs, the stories, the sightings make for a fast passing of time.
We found ourselves along the Sellwood Trail with many runners and bikers. The cottonwood trees are fragrant and a light, bright green. The smell always takes me back to my parents place and childhood.
I wish you well!
A great BIG thanks to Arleen and Bob for a $400 pledge and to Bob J for the $25 contribution! All your dollars and support are appreciated!
I enjoyed a 7 miler with my walking partners on Saturday morning! The laughs, the stories, the sightings make for a fast passing of time.
We found ourselves along the Sellwood Trail with many runners and bikers. The cottonwood trees are fragrant and a light, bright green. The smell always takes me back to my parents place and childhood.
I wish you well!
Wednesday, April 2, 2008
Underway!
I'm on the board with 4 miles! The sun finally returned to us in Portland yesterday and the day was glorious!! Tuesdays are on my schedule for the gym in the evening with cycle class, but I was itching to get outside. The Sellwood Trail offered a great opportunity to enjoy nature and soak up the rays. The geese and ducks are nesting right now and are paired and happily doing their thing. I am a bit puzzled by the Canandian geese pair who have taken over an osprey nest this year high on a pole. Recently, I noticed this taking place and just didn't believe it! A perching hummingbird was noted too.
Speaking of hummingbirds, lots of hummingbirds this winter. Perhaps because I do walk more now than I have previously, throughout the winter I have noted hummingbirds flitting about, usually sounding a bit agitated and "squeaking" like they do. A bold hummingbird on Monday morning was pestering a crow. Fascinating!
Be well!
Speaking of hummingbirds, lots of hummingbirds this winter. Perhaps because I do walk more now than I have previously, throughout the winter I have noted hummingbirds flitting about, usually sounding a bit agitated and "squeaking" like they do. A bold hummingbird on Monday morning was pestering a crow. Fascinating!
Be well!
Tuesday, April 1, 2008
April is here!
April for Alex is underway! Keep those pledges coming! It's not too late to sign up for a per mile charge or a lump sum donation. Send me an email at aprilforalex@gmail.com and let me know about your pledge!
Wednesday, March 19, 2008
A new pledge!
Thanks, Mary, for the $25 pledge. I appreciate the many extra efforts that so many are doing to help me with this fundraiser! To all of you at the office who are going above and beyond with your support, thank you!
April is getting close and I will be walking soon for your dollars!
April is getting close and I will be walking soon for your dollars!
Monday, March 17, 2008
Friday, March 14, 2008
More Thanks!
Training has been at a slow pace this week due to a sore leg.
I would like to give a big thanks to gals from my book club, Sandy and Kristen, for your $25 dollar contributions! Oh, Molly, a thanks to you too for the $1/mile pledge. I appreciate the support from all of you!
I would like to give a big thanks to gals from my book club, Sandy and Kristen, for your $25 dollar contributions! Oh, Molly, a thanks to you too for the $1/mile pledge. I appreciate the support from all of you!
Sunday, March 9, 2008
Make checks payable to...
Please make your donation checks payable to "Neuroacanthocytosis Fund". You can mail to Chris Hamilton, PO Box 68522 Milwaukie, OR 97268.
Thanks much!
Thanks much!
Friday, March 7, 2008
Pledge Update!
A great BIG thanks to everyone who is reading the flyer, considering a pledge and an even BIGGER thanks to those who are committing to a pledge. I appreciate the support greatly, as I know Ginger, Glen and Alex do as well.
Thanks to the latest pledgers! Kate $25, Dean $25 and my parents with a $300 pledge! You guys rock!
My training schedule is written for the month of March and the April walking miles plotted as well. Still working on routes to keep the variety!
Hope you are all happy and healthy!
Chris
Thanks to the latest pledgers! Kate $25, Dean $25 and my parents with a $300 pledge! You guys rock!
My training schedule is written for the month of March and the April walking miles plotted as well. Still working on routes to keep the variety!
Hope you are all happy and healthy!
Chris
Sunday, March 2, 2008
Weekend update
Preparing myself for next month. While I have been walking regularly the past 2 months, my times will need to increase in April, I've only been walking about 30 minutes a day.
Spring is on it's way and I'm very excited about that! Yesterday, I was greeted by a willow tree leaves just emerging, a halo of bright spring green. Beautiful! The daphne is blooming too with its pungent lemony-gingery scent hanging in the air and thrilling me each time I catch a wiff.
To my walking partners, Barbara and Sherry, one for the log. Friday morning I spotted an owl, dead of course, as our log entries usually are. He was about 8" tall with feathery furry legs, short ears and appeared to be resting (almost peacefully) except for the barely perceptible hint of red at his beak. Poor bugger!
Several new pledges!! Yeah and thank you greatly to all!! Mona $25, Lisa $25 and Julee $2 per mile! You all rock!
Be healthy today...take a walk!
Spring is on it's way and I'm very excited about that! Yesterday, I was greeted by a willow tree leaves just emerging, a halo of bright spring green. Beautiful! The daphne is blooming too with its pungent lemony-gingery scent hanging in the air and thrilling me each time I catch a wiff.
To my walking partners, Barbara and Sherry, one for the log. Friday morning I spotted an owl, dead of course, as our log entries usually are. He was about 8" tall with feathery furry legs, short ears and appeared to be resting (almost peacefully) except for the barely perceptible hint of red at his beak. Poor bugger!
Several new pledges!! Yeah and thank you greatly to all!! Mona $25, Lisa $25 and Julee $2 per mile! You all rock!
Be healthy today...take a walk!
Tuesday, February 26, 2008
New Pledges!
Thank you Patti and Steve for your pledges!! The first ones! Patti has pledged $1 per mile and Steve a flat $100! Pretty cool!
Just an FYI! Pledge checks can be made to Neuroacanthocytosis Fund.
Wanted to share the great news!
Just an FYI! Pledge checks can be made to Neuroacanthocytosis Fund.
Wanted to share the great news!
Sunday, February 24, 2008
Friday, February 22, 2008
Getting Started!
April for Alex. A new adventure...fundraising!
I have decided to accept the challenge posed by Glenn and Ginger Irvine, who we met in London this past fall, and do my best to help raise funds and hopefully bring a bit more notice to neuroacanthocytosis.
Alex lives in London with her parents. I had the pleasure of meeting her and her cat, KC, while traveling there in September 2007. Alex turns 37 this year. She first exhibited symptoms of this disease at the age of 24, two years after graduating Tufts University. Alex works hard at daily tasks that become more and more difficult due to ongoing degeneration of her body because of Neuroacanthocytosis. Specifically, chorea-acanthocytosis.
I had the great pleasure of speaking with Dr. Susan Hayflick at OHSU this week. She works primarily on a group of disorders related to neuroacanthocytosis called neurodegeneration with brain iron accumulation (NBIA). She has been involved with research at OHSU for some time and they have had great success in identifying two genes involved in NBIA. For more info on Dr. Hayflick, please google Dr. Susan Hayflick (I know a specific website would be easier, there's just so much info and this will allow you access to it all!).
So, there are some differences between Alex's disorder and the NBIA that Dr. Hayflick researches, however, she made an interesting point while I chatted with her. There is an "intersection of the disorders" that warrants coming together to discuss the similarities rather than being polarized because of the differences. Research could be moved forward by working together. She has accepted an invitation to speak at the UK Symposium July1-2, 2008.
Okay, this is where I come in with fundraising. I would like to assist by helping to raise funds to assist Glenn and Ginger's cause in helping pay costs of Dr. Hayflick and others who have agreed to fly to London/Oxford this summer and with any good fortune to send some on to research.
During the month of April, I will be walking (my goal is 80 miles for the month) and hope to have your support with $$ per mile pledges or a set $$ amount. Please send me an email at aprilforalex@gmail.com.
Thanks in advance for your support!
For more info: www.naadvocacy.org or google Dr. Susan Hayflick.
I have decided to accept the challenge posed by Glenn and Ginger Irvine, who we met in London this past fall, and do my best to help raise funds and hopefully bring a bit more notice to neuroacanthocytosis.
Alex lives in London with her parents. I had the pleasure of meeting her and her cat, KC, while traveling there in September 2007. Alex turns 37 this year. She first exhibited symptoms of this disease at the age of 24, two years after graduating Tufts University. Alex works hard at daily tasks that become more and more difficult due to ongoing degeneration of her body because of Neuroacanthocytosis. Specifically, chorea-acanthocytosis.
I had the great pleasure of speaking with Dr. Susan Hayflick at OHSU this week. She works primarily on a group of disorders related to neuroacanthocytosis called neurodegeneration with brain iron accumulation (NBIA). She has been involved with research at OHSU for some time and they have had great success in identifying two genes involved in NBIA. For more info on Dr. Hayflick, please google Dr. Susan Hayflick (I know a specific website would be easier, there's just so much info and this will allow you access to it all!).
So, there are some differences between Alex's disorder and the NBIA that Dr. Hayflick researches, however, she made an interesting point while I chatted with her. There is an "intersection of the disorders" that warrants coming together to discuss the similarities rather than being polarized because of the differences. Research could be moved forward by working together. She has accepted an invitation to speak at the UK Symposium July1-2, 2008.
Okay, this is where I come in with fundraising. I would like to assist by helping to raise funds to assist Glenn and Ginger's cause in helping pay costs of Dr. Hayflick and others who have agreed to fly to London/Oxford this summer and with any good fortune to send some on to research.
During the month of April, I will be walking (my goal is 80 miles for the month) and hope to have your support with $$ per mile pledges or a set $$ amount. Please send me an email at aprilforalex@gmail.com.
Thanks in advance for your support!
For more info: www.naadvocacy.org or google Dr. Susan Hayflick.
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